A r t h r o g r y p o s i s - +
Sometimes I have those days when I am sad and I ask my self why I'm here. With the challenges I have to face day after day its hard not to wonder why I exist. I suffer and there are times that I just need to break down and cry. But I don't give up, even if it feels like I do, even if that's all I want to do. Parents may think that having a disabled child is the worst thing that can happen to them and their baby. I know it can be pretty devistating, but it doesn't mean that there isn't hope. There will always be tough times, especially when that child grows up and begins to ask questions about why he/she was born like this. This child may wonder why people stare and why children are so cruel. This child will face many challenges and the best thing to do is to be by that child's side 100% of the way. Without my parents I don't know where I would be now. Their love and support gave me strength as well as many beautiful memories. Its those memories and the hope for new memories that give me hope.
One of my favorite stories to tell begins when I was little. You hear all these stories from parents talking about their child's first step, and how adorable their child looked as he/she fell on their butt. Of course everyone listening responds, 'oh how cute,' but how many people truly remember taking their first steps? You were probably too young to remember, and like everyone else, the event of your first steps was most probably recounted to you by your mother and father. One of my more fondest memories is related to this.
I remember being so happy that day. It was such a triumph for me. There I am only four years old and I'm doing something I never even dreamed of. It was a really special moment and its memories like these that remind me that I have to try. I have to try to live my life as independantly as possible because maybe that's what God wants. But there will still be obstacles, just as there will be obstacles for children born with a disability. The best medicine for your child is your love and support. Give them that foundation they need so that one day they too might be able to take their own first steps. |